Information for professionals

We are a regional specialist paediatric palliative care service, based near Leeds. Along with our work in the hospice, we support families and professionals in homes and hospitals throughout the region.

Member of care team talking to young boy.
Antenatal and neonatal support

We provide support for these families, offering one to one, family-led care at home, in hospital and at our hospice.

Research

We aim to be a sector leader, identifying and undertaking research that provides evidence to improve the delivery of paediatric palliative care.

Woman helping young girl
Care referral form

We take referrals for children with life-limiting conditions up to the age of 19 years.

Family sat around table eating together.

Our key services

We are able to accept referrals from anyone and our key services include:

  • end of life care
  • specialist medical-led symptom control care
  • care after death
  • compassionate extubation
  • advance care planning and parallel planning
  • palliative care education service for professionals
  • highly specialist respite care for children with life limiting illness

We would encourage professionals to make early referrals for children and young people who meet our criteria and always pick up the phone to talk things through with us if you are unsure.

Two women caring for girl who is lying in a bed.

Quality, choice and empowering a voice

For us, children’s palliative care is about quality, choice and empowering a voice, ensuring that children, young people and their families receive the best quality care. We aim to enhance quality of life and ensure it is embedded throughout the care and support that we provide.

Real choices are vital for the children, young people and their families who use our services. Choices about where their care is provided, about preferred place of death and access to support and advice.

Empowering people to have a voice underpins everything we do to support children, young people and their families. Listening allows us to understand what is important in their lives and how we can support them to have a good death. Listening allows us to care with families.

Leader in paediatric care

We have been there since the start and continue to be a leader in paediatric palliative care. We are a centre of excellence and take pride in our team of specialist clinicians from both health and social care. Our clinical team is led by our two consultants in paediatric palliative medicine.

This not only enables us to provide the absolute highest standards of specialist paediatric and young adult palliative care but also allows us to support any health or social care colleague to support children, young people and their families in any setting through education and training.

Woman showing how to put medicinal cream on a dummy.

The Martin House Research Centre

The Martin House Research Centre has shaped the development of paediatric palliative care. It has been able to look at current and future prevalence of children and young people with life-limiting conditions, which will be used nationally and internationally to shape the future of service provision.

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