Watch Amelia's story
Regular visitors to the hospice since Amelia was six, Martin House has been with the family through the most difficult of times, as well as helping them to make precious memories together.
Amelia, now 14, suffered brain damage at birth, leaving her with quadriplegic cerebral palsy, but developed sepsis aged six, causing progressive intestinal failure, which made her condition life-shortening. More recently, emergency surgery to remove most of her small intestine, means Amelia has even bigger challenges to face.
Shabnam said: “Amelia, now has a central line following her surgery, so access to public pools is out of the question, and access to hydrotherapy pools is very difficult, so having that at Martin House is going to be life-changing for her."
It’s very difficult to do the normal things that families do, so to have all these new facilities will be life-changing for children like Amelia. It will allow us to make more precious memories.
THE BUILD will offer teenagers like Amelia dignity and privacy during their stay, in the best environment to meet their unique, and often complex, needs.
Amelia’s recent illness has meant she’s not been able to go on holiday or to the beach for some time, so Shabnam is looking forward to the new immersive sensory room.
She said: “It’ll give her the experiences that she can’t always get. Like taking her to the beach, as not all beaches are wheelchair accessible, and sometimes she’s too poorly to get out and about."
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