Research

Martin House aims to be a sector leader, identifying and undertaking research that provides evidence to improve the delivery of paediatric palliative care. With the Martin House Research Centre, and our role as an active research organisation we hope to produce research that improves paediatric palliative care not only in Martin House but across sectors that provide services to children and families in which there is a child with palliative care needs.
 

The Martin House Research Centre

The Martin House Research Centre is a partnership between Martin House Children's Hospice, the University of York (Department of Health Sciences and the Social Policy Research Unit) and the University of Leeds. The Centre is a multi-disciplinary hub for research on the holisitic care and support of children and young people with palliative care needs, their families, and professionals working in palliative care. It is holistic in it's scope, recognising that the care and support needs of children and families span clinical/medical, social, psychological, parenting/caring, spiritual, financial, and practical gains. 

The vision of MHRC is to carry out high quality applied research of national andinternational significance based on a model of collaboration with families, professionals and academics in other institutions. The Centre's outputs will help to ensure that all children and families receive equitable, high quality care.

You can find out more about the Martin House Research Centre here:

More information is available on the Research Centre's website.


A Research Active Organisation

As part of our commitment to research, we have a Research Subcommittee of the Board of Trustees that reports to the main Board. The research strategy for the hospice promotes research awareness throughout the organisation, invests in the building of research capacity in the area through the funding of a PhD student, and contributes to the funding of an active academic research partnership.
 

Yorkshire and the Humber

Between 2011 and 2013, Martin House Children’s Hospice undertook comprehensive research into paediatric palliative care and support in Yorkshire and the Humber, with a report titled "Supporting Children with Life-Limiting Conditions, and their Families: Research Examining Service Provision in Yorkshire and the Humber".

The research collected information about the range of services available to children and young people with life-limiting conditions and their families living in the region.

The work also explored the views of professionals and families about the care and support available, and the strategies and resources families draw upon in order to access the support they need. This summary presents the key messages and findings from this work, and concludes with implications and recommendations for paediatric palliative care policy and practice. 


To download the summary version of the report please click here.