Below you will find some links to external sites.
We do not have any control over the content of these sites and provide the links only as a means of obtaining further information.
Children's Hospices UK is the national voice for children's hospice services, and through them the children and families who use them. Children's Hospices UK works together with other organisations to support the development of best practice and provision of children's hospice services across the UK.
Welcome! This is a site about growing up with medical problems. Its goal is to help people understand what it's like, from the perspective of the children and teens who are doing just that. These kids have become experts at coping with problems that most of you have never heard of. They'd like you to know how they do it, and they hope that you'll be glad you came to visit.
Training, information and support for professionals working with bereaved parents and children.
CHI provides education, training and technical assistance to those who care for children with life-threatening conditions and their families.
Information for families with disabled children.
Help the Hospices is the national charity for the hospice movement. Hospices give unparalleled care to people who are facing the end of life - and to those who love them.
Hospice Information is a joint venture between St. Christopher's Hospice and Help the Hospices. It brings together the experience and established reputation for high quality of the Hospice Information Service at St. Christopher's and the national remit and innovative information developments of Help the Hospices.
Hopefully, an up to date list of hospice information pages on the internet, (in no particular order!) focussing on the United Kingdom and Ireland.
Children and young people with life-limiting or life-threatening conditions have very specific and unique palliative care needs, often different to those of adults. The International Children’s Palliative Care Network (ICPCN) shares a vision that these total needs should be met to encompass physical, emotional, spiritual and developmental aspects of care.
Jessie's Fund is a UK charity dedicated to helping seriously ill and disabled children by using music as a form of communication and for therapy.
Lifelites is striving to bring a ray of sunshine into the lives of children in hospices by providing them with the means to spend quality time with their families, the technology to keep in contact with their school and friends, and simply to enjoy themselves away from the constant reality of their illness.
NORD is a unique federation of individuals and organizations working together to build a better world for people affected by rare diseases.
ACT - the Association for Children's Palliative Care is a UK-registered charity which is striving to achieve the best quality of life and care for all children and young people with life-threatening or life-limiting conditions and their families.
Winston's Wish helps bereaved children and young people rebuild their lives after a family death. They offer practical support and guidance to families, professionals and anyone concerned about a grieving child.