We aim to identify and undertake research that provides evidence to improve the delivery of paediatric palliative care, not only in Martin House but across sectors that provide services to children and families in which there is a child with palliative care needs.
The Martin House Research Centre
We are very excited to be launching the Martin House Research Centre in partnership with The University of York. The Centre will provide a multi-disciplinary hub for research on the holisitic care and support of children and young people with palliative care needs, their families, and professioanls working in palliative care. The Centre's outputs will help to ensure that all children and families receive equitable, high quality care.
The Centre’s research will be organised under three work streams: epidemiology, health and care services and clinical interventions. These work streams fit closely with the issues and topics identified as evidence gaps by the draft NICE guidance on ‘End of Life Care for Infants, Children and Young People’.
Dr Lorna Fraser, Senior Lecturer in the Department of Health Sciences at the University of York, will be Director of the Centre and Professor Beresford, Co-Director of the Social Policy Research Unit at the University of York, will be the Assistant Director. Other members of the Centre management team will be Dr Jan Aldridge, Consultant Clinical Psychologist at Martin House, and Dr Roger Parslow, an epidemiologist and health services researcher at the University of Leeds.
A Research Active Organisation
As part of our commitment to research, we have a Research Subcommittee of the Board of Trustees that reports to the main Board. The research strategy for the hospice promotes research awareness throughout the organisation, invests in the building of research capacity in the area through the funding of a PhD student, and contributes to the funding of an active academic research partnership.
Yorkshire and the Humber
Between 2011 and 2013, Martin House Children’s Hospice undertook comprehensive research into paediatric palliative care and support in Yorkshire and the Humber. The research collected information about the range of services available to children and young people with life-limiting conditions and their families living in the region.
"Supporting Children with Life-Limiting Conditions, and their Families: Research Examining Service Provision in Yorkshire and the Humber"
The work also explored the views of professionals and families about the care and support available, and the strategies and resources families draw upon in order to access the support they need. This summary presents the key messages and findings from this work, and concludes with implications and recommendations for paediatric palliative care policy and practice.
To download the full version of the report please click here