We aim to identify and undertake research that provides evidence to improve the delivery of paediatric palliative care, not only in Martin House but across sectors that provide services to children and families in which there is a child with palliative care needs.
As part of this commitment, we have a Research Subcommittee of the Board of Trustees that reports to the main Board. The research strategy for the hospice promotes research awareness throughout the organisation, invests in the building of research capacity in the area through the funding of a PhD student, and contributes to the funding of an active academic research partnership.
"Supporting Children with Life-Limiting Conditions, and their Families: Research Examining Service Provision in Yorkshire and the Humber"
Between 2011 and 2013, Martin House Children’s Hospice undertook comprehensive research into paediatric palliative care and support in Yorkshire and the Humber. The research collected information about the range of services available to children and young people with life-limiting conditions and their families living in the region.
The work also explored the views of professionals and families about the care and support available, and the strategies and resources families draw upon in order to access the support they need. This summary presents the key messages and findings from this work, and concludes with implications and recommendations for paediatric palliative care policy and practice.
To download the full version of the report please click here