Holly's Story

 

"It was definitely a life changing point for us. We had struggled with caring for Holly with no respite and without a full night's sleep, that’s one thing I love about going to Martin House......SLEEP!"


Julie's daughter, Holly, has Retts Syndrome,a rare condition that affects the development of the brain. It can cause severe physical and mental disability that begins in early childhood. Julie explains how Martin House has become a big part of the family life:

"We first found out about Martin House when I was attending a professional study day, and I realised the children they were talking about that day were children like my own daughter, Holly.

"Holly has a life-limiting disability but no one had ever said those words to us. I had to leave the study day heartbroken but that was the day I met the most wonderful doctor, Dr Mike.

"Dr Mike invited my family and I to Martin House and well the rest is history! It was definitely a life changing point for us, we had struggled with caring for Holly with no respite and without a full night's sleep. That’s one thing I love about going to Martin House......SLEEP!

"Our experience as a family going to Martin House has been extraordinary. We have met lifelong friends, who like us have found themselves caring for our beautiful children who have lifelong battles with ill health. It’s a real home from home, no sadness it’s a really happy place. They care for you as a family and each family has its own unique needs – siblings play a huge part of the ethos of Martin House and our other children are no exception to this. They attend Time 4 Us sibling group and are able to meet other children who find themselves in similar situations to themselves.

"In 2014, we were privileged to take part in a project run by Martin House and Northern Ballet which has enabled our family to access the arts and experience music, movement, ballet and photography which we would have found impossible to participate in as a family without their help, the whole experience was amazing.

"We are eternally grateful for all the care our family receives from Martin House and totally indebted to them and because of this found ourselves as contestants in their Strictly Get Dancing event! We are having so much fun but at the same time raising greatly needed funds for Martin House......a truly exceptional place."